RESTART: Top 10 Research Priorities for Dental Care in People with Lived Experience of Severe Mental Distress

Introduction

We’d be grateful if you could complete this short online survey (5 minutes approximately) that will ultimately lead to a Top Ten list of research questions on dental care to support recovery and improve health and wellbeing in people with lived experience of severe mental distress. By severe mental distress, we mean conditions such as schizophrenia and other psychotic illnesses, bipolar affective disorder, significant depressive and anxiety disorders, and dependency on alcohol or illicit drugsThe process aims to promote research that will lead to the outcomes people with severe mental distress, their carers, and healthcare professionals are interested in. Our goal is to provide a clear direction for future research so that it benefits the lives of individuals and families, and increases the amount of funding for the most important research on dental care for people with lived experience of severe mental distress. We want to see research made with your input.

RESTART is overseen by a Steering Committee that includes people with lived experience of severe mental distress, carers, mental and dental healthcare professionals and academics.

Severe Mental Distress

It is a priority for us to include the opinions of, and set priorities for, individuals with a wide range of different experiences of severe mental distress and from different age groups across the nation. We are interested to hear from:

  • People who have had a formal diagnosis or self-diagnosis of severe mental distress including (but not limited to): schizophrenia and other psychotic illnesses, bipolar affective disorder, significant depressive and anxiety disorders, and dependency on alcohol or illicit drugs.
  • Family members and carers of individuals with lived experience of severe mental distress.
  • Professionals and volunteers who support people with lived experience of severe mental distress and their carers.

We are only asking for responses from people who are living in the UK.

We recognise that some people might need help from others to respond so please indicate that in the corresponding question in the survey.

What happens to the data collected?

In the survey we ask you for the 3 questions you think are most important for research to answer, and a few demographic questions such as age, gender and ethnicity. All demographic questions will be stored separately from your questionnaire responses. This information helps us know if any group is under-represented amongst received responses, and hence more engagement is needed with them.

You can respond anonymously to this survey – you do not have to give your name or contact details.

The agreed Top 10 Priorities list will be published and shared via email or post. We will then work together with researchers and research funders to promote the research you would like done.

Agreeing to take part

By completing this survey you are agreeing to your opinions being included in the decision making process about future research. You can keep up to date with progress by ticking a box to register your interest once you've completed this survey.